ua mama bear – Gluten Free – with PANDAS

Family Health and Happiness Beating PANDAS and Being Gluten-Free

Celiac Awareness Month May 29, 2012

Filed under: Gluten-Free Information,Health — uamamabear @ 10:28 pm
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May is Celiac Awareness Month – and I am a little late to the party 🙂 There are only two days left in the month of May, but I wanted to share a great blog that a friend  sent me: GlutenDude He is putting a post on his blog each day for all 31 days of May to help with Celiac Awareness. So now you can enjoy 29 of those post instantly!

Something else to share for those skeptics (myself included) about gluten causing anything other than digestion discomfort. I have seen the changes occur in my middle son that it is true, gluten affects him, but I was not really sure about myself until this weekend! My oldest son and I went to a soccer tournament over Memorial Day weekend and yes I ate some gluten, it did not really bother my stomach, and I thought well I guess that it does not bother me that much one way or another. By Monday though I was very lethargic and grouchy, and my oldest very snappy at his brothers. It hit me today – it’s the GLUTEN!! I told my son today, we are going to be much more strict about staying off gluten and he happily agreed, he must be noticing his irritable mood also.

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Curcumin Anyone? May 26, 2012

Filed under: Health — uamamabear @ 9:49 am
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Before PANDAS came into our lives, I had heard about and even cooked with Tumeric, but I did not realize the many health benefits in this one spice. At the time my boys’ were diagnosed with PANDAS, they started antibiotics, gluten-free diet (because of the test results showing high gluten intolerance), and the addition of Enhansa ( blend of curcuminoids) along with their daily multivitamin.

As the boys started getting better, I wondered what is really working, we changed so many things at one time. I tried to tell myself, it doesn’t matter they are getting better, but I still wondered. Then one weekend I ran out of Enhansa and found out that everything we were doing was working, because by Monday morning both boys woke up feeling horrible, complaining of their stomach hurting, headache, body aches. I RAN to the doctor’s office to get more Enhansa and by Tuesday night they were feeling better. Nothing else in their diet, supplements, or antibiotics had changed except for the missing Enhansa. That convinced me that there is really something to this spice, now I have researched it more and scientist show that it is helping with cancer, Alzheimer’s and other autoimmune diseases.

Here are two links that I found interesting. One is a description of Tumeric and the other site has links to quite a few research studies looking at how Tumeric helps.

Check out the PANDAS support group – Columbus, OH Facebook Page come ask questions, have discussions, meet other families of children with PANDAS.

 

Facebook Page – PANDAS Parents – Columbus, OH May 24, 2012

Filed under: Uncategorized — uamamabear @ 11:40 pm
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A Facebook page for our local support group has been created – here is the link

Please use it for discussions, ask questions, extra support and awareness about this disease.

 

Vit. B-12 Deficiency – who knew it could cause so many things??? May 23, 2012

Filed under: Health — uamamabear @ 3:00 pm
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As we are working on the gluten/dairy free changes in the way we eat, we are also adding supplements into our daily routine. Here is an interesting article about the symptoms of Vit. B-12 deficiency and why Vit. B-12 is so important.

 

PANDAS Support Group Meeting this Thursday! May 21, 2012

Filed under: Support Group information,Uncategorized — uamamabear @ 7:45 pm
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Our first PANDAS support group meeting is this Thursday, May 24th at 7pm at Colin’s Coffee (3714 Riverside Drive, Columbus, OH 43221) . If you have any questions please feel free to contact me by email: uamamabear@gmail.com.

If you are not able to make it to this meeting our next meeting will be on Wednesday, July 18th at 7pm at Colin’s Coffee (3714 Riverside Drive, Columbus, OH 43221).

 

The Ultimate in Gluten-Free – Going Paleo! May 18, 2012

Filed under: Gluten-Free Information — uamamabear @ 3:00 pm
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As our family was going gluten-free, we found information about the “Paleo Diet”. I hate to use the word diet, when I think of the word diet, I think of someone that is changing the way they are eating for a short period of time until they get the results they want (usually weight loss). I like to look at our change in what we eat as more of a conscious effort to eat healthier and be aware of gluten and dairy in all items. That is why the Paleo way of eating seems great because all foods suggested have no gluten or dairy in them! Here is a link to Robb Wolf’s website and about his book “The Paleo Solution”. It is informative with research about why our bodies can not handle gluten and dairy, and even if you think you are fine eating grains, why grains are not healthy for you.

I did not think I had a problem with grains, but after being gluten-free for awhile, I feel like I have more energy and I have lost weight (bonus!). Our youngest son has had asthma, allergies and dry eyes for most of his life – and this year the dry eyes were getting worse even with the added eye drops we used daily. Since going gluten/dairy free – I can’t even tell he has allergies/asthma and we just saw his eye doctor for a check-up and his dry eyes are improving! That is plenty of proof for me that he is going to stay gluten-free!

 

Puzzling Pediatric Diagnosis – PANDAS, PANS, PITAND May 17, 2012

Filed under: PANDAS Information — uamamabear @ 3:03 pm
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Check out this video that a Cleveland group of parents and doctors made to help get the word out about PANDAS. You can also find this group on Facebook at: Puzzling Pediatric Diagnosis

Dr. Jan Kriwinsky, a pediatrician in Beachwood, Ohio is now diagnosing AND treating PANDAS patients with IVIG.

Check out this link that explains what IVIG is and how it can help certain PANDAS cases.

 

 
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